I had received the same immunotherapy treatment more than thirty years ago and remember it as being something of a cakewalk. This time around it is not such a walk in the park.
Nausea, fatigue, dizzyness and anomic aphasia, the cognitive inability to come up with a once familiar word. And lots of localized pain in the lower region. Burns like hell, nothing I can do about it. At least I am losing weight, no appetite.
I had my first treatment last Wednesday, then went to the antique show and set up. I was tired the first day but totally lost it the second, people said I had turned very pale. I went home completely wacked, not sure how I even got home I felt so rotten.
The next night I stayed with friends on the coast so as not to kill myself driving. Had a very good show, but certainly paid the price for it.
Left for San Diego at 6:30 this morning to make my early treatment. Today I feel even worse than I did last week. Not sure how many more treatments I get, I think four in this initial run, but I do know it will be one interesting ride.
5 comments:
I have had problems with aphasia for yeArs.
I hate it but just love with it. Scared mg because when it gets bad he worries about dementia.
Hang in there...bumpy road, but the journey gets better and better.
KJ
Really sorry to hear that your treatment has these effects, Robert. No free lunch, I guess. You seem to push yourself pretty hard in terms of work, so if it's possible give yourself a break these next few weeks. Hang in there and we'll be rooting for you.
Have you tried listening to some great tunes during them torturous sessions? I've found certain music, songs, tones, etc., can alleviate some pain. Feel better soon!
Feeling for you Robert. I'm sure it will be worth it in the long run!
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